Quality of life and burden in carers for persons with Chronic Obstructive Pulmonary Disease receiving oxygen therapy

Authors

  • Simone Cedano Universidade Federal de Sao Paulo; Escola Paulista de Enfermagem
  • Ana Rita de Cassia Bettencourt Universidade Federal de Sao Paulo; Escola Paulista de Enfermagem
  • Fabiana Traldi Universidade Federal de Sao Paulo; Escola Paulista de Enfermagem
  • Maria Christina Lombardi Oliveira Machado Universidade Federal de Sao Paulo; Hospital Sao Paulo
  • Angelica Goncalves Silva Belasco Universidade Federal de Sao Paulo; Escola Paulista de Enfermagem

DOI:

https://doi.org/10.1590/S0104-11692013000400005

Abstract

OBJECTIVE: to assess the quality of life and burden of caregivers to Chronic Obstructive Pulmonary Disease patients on Long-Term Oxygen Therapy and to investigate the factors influencing this burden. METHOD: this is an analytical, cross-sectional study of 80 persons with Chronic Obstructive Pulmonary Disease on Long-Term Oxygen Therapy who used the specialized outpatient center of the Federal University of São Paulo, and their carers. The following instruments were used: Medical Outcomes Studies 36 (SF-36), Caregiver Burden Scale (CBS) and the Katz Index, along with socio-demographic and clinical variables. RESULTS: the most compromised scores on the carers' quality of life questionnaire were for Vitality and Mental Health. On the Caregiver Burden Scale, the domain which created the greatest burden for carers was the Environment. With the exception of Emotional Involvement, all the domains of quality of life were affected negatively by the domains of caregiver burden. CONCLUSION: it was shown that carers' quality of life was compromised and that they were overburdened with care tasks, confirming that assisting persons with Chronic Obstructive Pulmonary Disease is an important element in carers' quality of life.

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Published

2013-07-01

Issue

Vol. 21 No. 4 (2013)

Section

Original Articles

License

RLAE’s authorship concept is based on the substantial contribution by each of the individuals listed as authors, mainly in terms of conceiving and planning the research project, collecting or analyzing and interpreting data, writing and critical review. Indication of authors’ names under the article title is limited to six. If more, authors are listed on the online submission form under Acknowledgements. The possibility of including more than six authors will only be examined on multicenter studies, considering the explanations presented by the authors.
Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Quality of life and burden in carers for persons with Chronic Obstructive Pulmonary Disease receiving oxygen therapy . (2013). Revista Latino-Americana De Enfermagem, 21(4), 860-867. https://doi.org/10.1590/S0104-11692013000400005