Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team

Authors

  • Tassia de Arruda Bonfim Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Centro Colaborador da OPAS/OMS para o Desenvolvimento da Pesquisa em Enfermagem, Ribeirão Preto, SP, Brasil. http://orcid.org/0000-0002-2367-4097
  • Bianca Cristina Ciccone Giacon-Arruda Universidade Federal de Mato Grosso do Sul, Instituto Integrado de Saúde, Campo Grande, MS, Brasil. http://orcid.org/0000-0002-8433-6008
  • Sueli Aparecida Frari Galera Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Centro Colaborador da OPAS/OMS para o Desenvolvimento da Pesquisa em Enfermagem, Ribeirão Preto, SP, Brasil. Bolsista do Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Brasil. http://orcid.org/0000-0001-7974-9214
  • Elen Ferraz Teston Universidade Federal de Mato Grosso do Sul, Instituto Integrado de Saúde, Campo Grande, MS, Brasil. http://orcid.org/0000-0001-6835-0574
  • Francisneide Gomes Pego do Nascimento Escola Paulista de Enfermagem, São Paulo, SP, Brasil. http://orcid.org/0000-0002-0130-0385
  • Maria Angélica Marcheti Universidade Federal de Mato Grosso do Sul, Instituto Integrado de Saúde, Campo Grande, MS, Brasil. http://orcid.org/0000-0002-1195-5465

DOI:

https://doi.org/10.1590/1518-8345.5694.3781%20

Keywords:

Autism Spectrum Disorder; Family; Child; Delivery of Health Care; Health Personnel; Healthcare Models

Abstract

Objective: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. Method: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis® software and submitted to Thematic Content Analysis. Results: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. Conclusion: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum.

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Published

2023-03-06

Issue

Vol. 31 (2023)

Section

Original Articles

License

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

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Including names of authors whose contribution does not fit into the above criteria cannot be justified. Those names can be included in the Acknowledgements section.
 Authors are fully responsible for the concepts disseminated in their manuscripts, which do not necessarily reflect the editors’ and editorial board’s opinion.

 

How to Cite

Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team. (2023). Revista Latino-Americana De Enfermagem, 31, e3781. https://doi.org/10.1590/1518-8345.5694.3781