Development and validation of a quality of life questionnaire in individuals with spinal cord injury

Authors

  • Sibele Pelloso Feniman
  • Jefferson Rosa Cardoso Universidade Estadual de Londrina - UEL
  • Isabela Lucia Pelloso Villegas
  • Lais Faganello Dela Bela Faculdade de Ensino Superior Dom Bosco
  • Suhaila Mahmoud Smaili Santos Universidade Estadual de Londrina - UEL
  • Edson Lopes Lavado Universidade Estadual de Londrina - UEL

DOI:

https://doi.org/10.5935/0104-7795.20160033

Keywords:

Quality of Life, Spinal Cord Injuries, Surveys and Questionnaires

Abstract

Objective: Create and test the psychometric proprieties of the specific instrument for the quantification of the quality of life in subjects with spinal cord injuries. Methods: From the existing consensus methods was chosen the Delphi technique for the creation of the questionnaire and the SF-36 for criteria method. Results: The internal consistence was α=0,827. The intra and inter evaluators confidence shows itself high by the intra class correlation coefficient and the Brand and Altman test by the difference of average. Can be observed strong correlations between the QVLM and SF-36 in the functional capacity and physical aspects domains and moderate correlation in the health state and emotional aspects domains. There was a significant difference between the four applications of QVLM, demonstrating that the questionnaire is sensible to change. Conclusion: The QVLM was created with a suitable methodology and the evaluation of the psychometrics proprieties turn out to be on a valid, reliable, consisting and sensible to changes instrument

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References

Fleck MPA. O instrumento de avaliação de qualidade de vida da Organização Mundial da Saúde (WHOQOL-100): características e perspectivas. Ciênc Saúde Coletiva. 2000;5(1):33-8. DOI: http://dx.doi.org/10.1590/S1413-81232000000100004

Cowell LL, Squires WG, Raven PB. Benefits of aerobic exercise for the paraplegic: a brief review. Med Sci Sports Exerc. 1986;18(5):501-8. DOI: http://dx.doi.org/10.1249/00005768-198610000-00002

Figueiredo-Carvalho ZM, Gomes-Machado W, Araújo-Façanha DM, Rocha-Magalhães S, Romero-Rodrigues AS, Carvalho-e-Brito AM. Avaliação da funcionalidade de pessoas com lesão medular para atividades da vida diária. Aquichan. 2014; 14(2): 148-58.

Levine DW, Simmons BP, Koris MJ, Daltroy LH, Hohl GG, Fossel AH, et al. A self-administered questionnaire for the assessment of severity of symptoms and functional status in carpal tunnel syndrome. J Bone Joint Surg Am.1993;75: 1585-92. DOI: http://dx.doi.org/10.2106/00004623-199311000-00002

Maher CG, Latimer J, Costa LOP. The relevance of cross-cultural adaptation and clinimetrics for physical therapy instruments. Rev Bras Fisioter. 2007;11(4):245-52. DOI: http://dx.doi.org/10.1590/S1413-35552007000400002

Marques AP, Santos AMB, Assumpção A, Matsutani LA, Lage LV, Pereira CAB. Validação da versão brasileira do Fybromyalgia Impact Questionnaire (FIQ). Rev Bras Reumatol.2006;46(1):24-31. DOI: http://dx.doi.org/10.1590/S0482-50042006000100006

Lude P, Kennedy P, Elfström ML, Ballert CS. Quality of life in and after spinal cord injury rehabilitation: a longitudinal multicenter study. Top Spinal Cord Inj Rehabil. 2014;20(3):197-207. DOI: http://dx.doi.org/10.1310/sci2003-197

Celik HD, Turk AC, Sahin F, Yilmaz F, Kuran B. Comparison of disability and quality of life between patients with pediatric and adult onset paraplegia. J Spinal Cord Med. 2017 Jan 19:1-8. Doi: 10.1080/10790268.2016.1275447 DOI: http://dx.doi.org/10.1080/10790268.2016.1275447

Nooijen CF, Stam HJ, Sluis T, Valent L, Twisk J, van den Berg-Emons RJ. A behavioral intervention promoting physical activity in people with subacute spinal cord injury: Secondary effects on health, social participation and quality of life. Clin Rehabil. 2016. pii: 0269215516657581. DOI: http://dx.doi.org/10.1177/0269215516657581

Milinis K, Young CA; Trajectories of Outcome in Neurological Conditions (TONiC) study. Systematic review of the influence of spasticity on quality of life in adults with chronic neurological conditions. Disabil Rehabil. 2016;38(15):1431-41. DOI: http://dx.doi.org/10.3109/09638288.2015.1106592

Menezes PR. Validade e Confiabilidade das Escalas de Avaliação em Psiquiatria. Rev Psiquiatr Clin. 1998;25(5):241-6.

Delbecq AL, Van de Ven AH, Gustafson DH. Group techniques for program planning: a guide to nominal group and Delphi processes. Glenview: Scott Foresman; 1975.

Dalkey N, Helmer O. An experimental application of the Delphi-method to the use of experts. Manage Sci.1963;9(3):458-67. DOI: http://dx.doi.org/10.1287/mnsc.9.3.458

American Spinal Injury Association [Homepage on the Internet]. Richmond: ASIA; c2017 [cited 2008 Nov 07]. Available from: http://www.asia-spinalinjury.org

Instituto Brasileiro de Geografia e Estatística. Censo 2010 [Texto na Internet]. Brasília; c2017 [Citado 2011 Ago 05]. Disponível em: http://censo2010.ibge.gov.br/censo-2010.html

Pocock SJ. Clinical trials: a practical approach. New York; John Wiley and Sons; 1984.

Jelsness-Jørgensen LP, Bernklev T, Moum B. Quality of life in patients with inflammatory bowel disease: translation, validity, reliability and sensitivity to change of the Norwegian version of the short health scale (SHS). Qual Life Res. 2012;21(9):1671-6. DOI: http://dx.doi.org/10.1007/s11136-011-0081-7

Paiva CE, Rugno FC, Paiva BSR. The Barretos short instrument for assessment of quality of life (BSIqol): development and preliminary validation in a cohort of cancer patients undergoing antineoplastic treatment. Health Qual Life Outcomes. 2012;10:144. DOI: http://dx.doi.org/10.1186/1477-7525-10-144

Bland JM, Altman DG. Statistical methods for assessing agreement between two methods of clinical measurement. Lancet. 1986;1(8476):307-10.

Rankin G, Stokes M. Reliability of assessment tools in rehabilitation: an illustration of appropriate statistical analyses. Clin Rehabil. 1998;12(3):187-99. DOI: http://dx.doi.org/10.1191/026921598672178340

Nusbaum L, Natour J, Ferraz MB, Goldenberg J. Translation, adaptation and validation of the Roland-Morris questionnaire--Brazil Roland-Morris. Braz J Med Biol Res. 2001;34(2):203-10. DOI: http://dx.doi.org/10.1590/S0100-879X2001000200007

Elbers RG, van Wegen EE, Verhoef J, Kwakkel G. Reliability and structural validity of the Multidimensional Fatigue Inventory (MFI) in patients with idiopathic Parkinson's disease. Parkinsonism Relat Disord. 2012;18(5):532-6. DOI: http://dx.doi.org/10.1016/j.parkreldis.2012.01.024

Ciconelli RM, Ferraz MR, Santos W, Meinão I, Quaresma MR. Tradução para a língua portuguesa e validação do questionário genérico de avaliação de qualidade de vida SF-36 (Brasil SF-36). Rev Bras Reumatol. 1999;39(3):143-50.

Pereira LM. Tradução, adaptação transcultural e avaliação das propriedades psicométricas do Lower Extremity Functional Scale (LEFS): LEFS-Brasil [Dissertação]. Londrina; Universidade Estadual de Londrina; 2011.

Cacchio A, De Blasis E, Necozione S, Rosa F, Riddle DL, di Orio F, et al. The Italian version of the lower extremity functional scale was reliable, valid, and responsive. J Clin Epidemiol. 2010;63(5):550-7. DOI: http://dx.doi.org/10.1016/j.jclinepi.2009.08.001

Terwee CB, Dekker FW, Wiersinga WM, Prummel MF, Bossuyt PM. On assessing responsiveness of health-related quality of life instruments: guidelines for instrument evaluation. Qual Life Res. 2003;12(4):349-62. DOI: http://dx.doi.org/10.1023/A:1023499322593

Binkley JM, Stratford PW, Lott SA, Riddle DL. The Lower Extremity Functional Scale (LEFS): scale development, measurement properties, and clinical application. North American Orthopaedic Rehabilitation Research Network. Phys Ther. 1999;79(4):371-83.

Published

2016-12-29

Issue

Section

Original Article

How to Cite

1.
Feniman SP, Cardoso JR, Villegas ILP, Bela LFD, Santos SMS, Lavado EL. Development and validation of a quality of life questionnaire in individuals with spinal cord injury. Acta Fisiátr. [Internet]. 2016 Dec. 29 [cited 2024 Jun. 20];23(4):172-9. Available from: https://journals.usp.br/actafisiatrica/article/view/137668