Emotional overload measurement in caregivers of children with cerebral palsy
DOI:
https://doi.org/10.5935/0104-7795.20160005Keywords:
Cerebral Palsy, Child Development, Caregivers, WorkloadAbstract
Objective: This study aims to assess the level of emotional burden in caregivers of children with cerebral palsy, as well as the possible factors that influence the growth of that burden. Methods: This is a cross-sectional descriptive study conducted from February 2014 to September 2014, in public and private services physiotherapy clinics. Results: We studied 41 caregivers. The average burden the Burden Interview was 25.2 ± 10.1, where 37 of these caregivers were mothers. The burden was higher in individuals with family income between 1 and 2 minimum wages; older age (33.5 ± 14.77) were more likely to overload; and individuals who had a higher number of children (2 or 3), had a significant statistical results with p = 0.0091. Conclusion: The treatment provided to children with cerebral palsy and physical and socioeconomic conditions of the caregiver are important factors in increasing the emotional burden of these. Furthermore, we found that the greater the number of children, the greater the emotional overload, and that such a condition is directly related to age of the caregiver and the family income.
Downloads
References
Gonzales-Portillo GS, Reyes S, Aguirre D, Pabon MM, Borlongan CV. Stem cell therapy for neonatal hypoxic-ischemic encephalopathy. Front Neurol. 2014;5:147. DOI: http://dx.doi.org/10.3389/fneur.2014.00147
Van den Broeck C, De Cat J, Molenaers G, Franki I, Himpens E, Severijns D, et al. The effect of individually defined physiotherapy in children with cerebral palsy (CP). Eur J Paediatr Neurol. 2010;14(6):519-25. DOI: http://dx.doi.org/10.1016/j.ejpn.2010.03.004
Santos AAS, Vargas MM, Oliveira CCC, Macedo IAB. Avaliação da sobrecarga dos cuidadores de crianças com paralisia cerebral. Cienc Cuid Saude. 2010;9(3):503-9.
Barney CC, Krach LE, Rivard PF, Belew JL, Symons FJ. Motor function predicts parent-reported musculoskeletal pain in children with cerebral palsy. Pain Res Manag. 2013;18(6):323-7. DOI: http://dx.doi.org/10.1155/2013/813867
Forti-Bellani CD, Castilho-Weinert LV. Desenvolvimento motor típico, desenvolvimento motor atípico e correlações na paralisia cerebral. In: Castilho-Weinert LV, Forti-Bellani CD. Fisioterapia em neuropediatria. Curitiba: Omnipax; 2011. p.1-22.
Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl. 2007;109:8-14.
Assis-Madeira EA, Carvalho SG. Paralisia cerebral e fatores de risco ao desenvolvimento motor: uma revisão teórica. Cad Pós-Graduação Distúrbios Desenv. 2009;9(1):142-63.
Camargos ACR, Lacerda TTB, Viana SO, Pinto LRA, Fonseca MLS. Avaliação da sobrecarga do cuidador de crianças com paralisia cerebral através da escala Burden Interview. Rev Bras Saude Mater Infant. 2009:9(1):31-7. DOI: http://dx.doi.org/10.1590/S1519-38292009000100004
Oliveira AKC, Matsukura TS. Estresse e apoio social em cuidadores de crianças com paralisia cerebral. Cad Ter Ocup UFSCar. 2013;21(3):493-503. DOI: http://dx.doi.org/10.4322/cto.2013.051
Bella GP. Avaliação do estresse vivenciado por cuidadores de crianças com paralisia cerebral através da escala Burden Interview [Dissertação]. Campinas: Universidade Estadual de Campinas; 2008.
Scazufca M. Versão brasileira da escala Burden Interview para avaliação de sobrecarga em cuidadores de indivíduos com doenças mentais. Rev Bras Psiquiatr.2002;24(1):12-7.
Almeida SM, Conceição TMA. Prevalência de sintomas álgicos, sobrecarga e qualidade de vida de cuidadores de crianças com paralisia cerebral. Rev Pesq Fisioter. 2013;3(1):36-49.
Ferreira HGB. Aspectos familiares envolvidos no desenvolvimento de crianças com paralisia cerebral [Dissertação]. Ribeirão Preto: Universidade de São Paulo; 2007.
Bemister TB, Brooks BL, Dyck RH, Kirton A. Parent and family impact of raising a child with perinatal stroke. BMC Pediatr. 2014;14:182. DOI: http://dx.doi.org/10.1186/1471-2431-14-182
Barbosa DC, Sousa FGM, Silva ACO, Silva IR, Silva TP, Paiva MCM. Sobrecarga do cuidado materno à criança com condição crônica. Cogitare Enferm. 2012;17(3):492-7. DOI: http://dx.doi.org/10.5380/ce.v17i3.25830
Calderón C, Gómez-López L, Martínez-Costa C, Borraz S, Moreno-Villares JM, Pedrón-Giner C. Feeling of burden, psychological distress, and anxiety among primary caregivers of children with home enteral nutrition. J Pediatr Psychol. 2011;36(2):188-95. DOI: http://dx.doi.org/10.1093/jpepsy/jsq069
Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2):e182-91. DOI: http://dx.doi.org/10.1542/peds.114.2.e182
Marx C, Rodrigues EM, Rodrigues MM, Vilanova LCP. Depressão, ansiedade e sonolência diurna em cuidadores primários de crianças com paralisia cerebral. Rev Paul Pediatr. 2011;29(4):483-8. DOI: http://dx.doi.org/10.1590/S0103-05822011000400003
Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626-36.
Baltor MRR, Dupas G. Experiences from families of children with cerebral paralysis in context of social vulnerability. Rev Latinoam Enferm. 2013;21(4):956-3. DOI: http://dx.doi.org/10.1590/S0104-11692013000400018
Matsukura TS, Marturano EM, Oishi J, Borasche G. Estresse e suporte social em mães de crianças com necessidades especiais. Rev Bras Ed Esp. 2007;13(3):415-28. DOI: http://dx.doi.org/10.1590/S1413-65382007000300008
Oliveira MFS, Silva MBM, Frota MA, Pinto JMS, Frota LMCP, Sá FE. Qualidade de vida do cuidador de crianças com paralisia cerebral. RBPS. 2008;21(4): 275-80. DOI: http://dx.doi.org/10.5020/18061230.2008.p275
Alfaro N, Lázaro P, Gabriele G, Garcia-Vicuña R, Jover JÁ, Sevilla J. Perceptions, attitudes and experiences of family caregivers of patients with musculoskeletal diseases: a qualitative approach. Reumatol Clin. 2013;9(6):334-9. DOI: http://dx.doi.org/10.1016/j.reuma.2013.04.014
Yilmaz H, Erkin G, İzki AA. Quality of life in mothers of children with cerebral palsy. ISRN Rehabil. 2013;914738:5. DOI: http://dx.doi.org/10.1155/2013/914738
Sharan D, Ajeesh PS, Rameshkumar R, Manjula M. Musculoskeletal disorders in caregivers of children with cerebral palsy following a multilevel surgery. Work. 2012;41 Suppl 1:1891-5.
Rubira EA, Marcon SR, Belasco AGS, Gaíva MAM, Espinosa MM. Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico. Acta Paul Enferm. 2012;25(4):567-73. DOI: http://dx.doi.org/10.1590/S0103-21002012005000020
Batista CMF, Bandeira MB, Quaglia MAC, Oliveira DCR, Albuquerque EPT. Sobrecarga de familiares de pacientes psiquiátricos: influência do gênero do cuidador. Cad Saúde Colet. 2013;21(4):359-69. DOI: http://dx.doi.org/10.1590/S1414-462X2013000400002
Farias CA, Lima PO, Ferreira LA, Cruzeiro AL, Quevedo LA. Work overload faced by caregivers assisting frequenters of a psychosocial care center for children and adolescents in the south of Brazil. Cien Saude Colet. 2014;19(12):4819-27. DOI: http://dx.doi.org/10.1590/1413-812320141912.19182013
Adiga D, Gupta A, Khanna M, Taly AB, Thennarasu K. Sleep disorders in children with cerebral palsy and its correlation with sleep disturbance in primary caregivers and other associated factors. Ann Indian Acad Neurol. 2014;17(4):473-6. DOI: http://dx.doi.org/10.4103/0972-2327.144044
Knox V, Evans AL. Evaluation of the functional effects of a course of Bobath therapy in children with cerebral palsy: a preliminary study. Dev Med Child Neurol. 2002;44(7):447-60. DOI: http://dx.doi.org/10.1111/j.1469-8749.2002.tb00306.x
Downloads
Published
Issue
Section
License
Copyright (c) 2016 Acta Fisiátrica
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
