The ICF-CY for children and adolescents with osteogenesis imperfecta: the perspective of specialists
DOI:
https://doi.org/10.5935/0104-7795.20150037Keywords:
International Classification of Functioning, Disability and Health, Osteogenesis Imperfecta, ConsensusAbstract
Objective: From the perspective of specialists in Osteogenesis Imperfecta (OI), to identify the most relevant categories of the International Classification of Functioning, Disability, and Health: children and youth version (ICF-CY) to patients. Methods: Three-stage surveys were sent by email to five OI specialists using the modified Delphi method. From a list of second-level ICF-CY categories, the participants chose the most relevant categories to assess the functioning of children and adolescents with OI. At the end of the third stage, the categories considered relevant by at least 80% of the responders were selected. Results: Categorizations of all ICF-CY components were agreed upon. Activities, Participation, and Environmental Factors were the categories with the most components. Conclusion: A list of ICF-CY categories relevant to OI could be created from the perspective of specialists. This is an important step to highlight what to assess in children and adolescents with OI.
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